When I was at OHC last week and I had low platelets and a low white blood count, I couldn't have my treatment. At this time, the nurse practitioner Aimee (didn't see my usual NP, Lisa) said I would have it today, but I didn't. Aimee told me last week that even if blood count would be low that I'd have an injection and still have it. My white blood count was even lower today and platelets still low but higher than last week. Now I was told by Aimee that the insurance has to approve the injection and they wouldn't approve it yet but could have it next week. If still low, I'll have a patch to wear on arm and will have flu like symptoms for 24 hours from the injection. Insurance Co. likes to give it more time for white blood count to improve before they approve the injection. Then today Aimee told me that after I have the 6 months or 6 cycles of chemo treatment, that I have TWO more years of maintenance and go every other month. This is because my type of cancer does recur so I'll be in a maintenance program. I HAVE NEVER BEEN TOLD THIS BEFORE BY MY DOCTOR OR MY NP.
I called the office to see if I could talk to Dr. Herms or Lisa but haven't been able to talk to either one. I can't believe this can be true. It seems like this is something I would have been told at the beginning or sometime by my doctor. Aimee said they have been doing this 2 year program for some time. I really do not want to have meds for two more years. I'm discouraged.
I called the office to see if I could talk to Dr. Herms or Lisa but haven't been able to talk to either one. I can't believe this can be true. It seems like this is something I would have been told at the beginning or sometime by my doctor. Aimee said they have been doing this 2 year program for some time. I really do not want to have meds for two more years. I'm discouraged.
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